Since I published my first post yesterday, I’ve had loads of really positive feedback, which is definitely encouraging. However, I’ve also had a timely reminder in the form of a nice ILF (Independent Living Fund) man that, while I fight my own battle for healthcare funding some people are fighting to stay on Direct Payments in order to retain their autonomy and be able to choose who provides their care. Some PCTs have contracts with different agencies and they decide who they’ll pay, not you. What I’m saying is make sure that what you’re fighting for is actually better than what you do or don’t have right now.
Assuming that you’ve worked out that you do want to apply for NHS Continuing Healthcare funding, the following two links are essential initial reading. Don’t be put off by the length of the text; it’s written in plain English and is easily skimmable (despite my friend being told, haughtily, by a PCT assessor, ‘Oh, well, lay-people wouldn’t be able to understand it’! In my experience, the only people who can’t get their heads round the Department of Health regulations are the Continuing Care teams themselves).
The first link is to the the National Framework for NHS Continuing Healthcare and NHS-funded Nursing Care, July 2009 (revised).
The second is for the NHS Continuing Healthcare Practice Guidance, published 1 April 2010.
I think that’s enough to be getting on with for now! More soon.